Well I've just come from a colorectal surgery specialist
Who has confirmed what I pretty much already knew: that my constantly draining fistula is essentially inoperable (it'll never heal because of my Crohn's) since the usual treatments will pretty much just make it bigger and bloodier and as a bonus, maybe even make me incontinent for the rest of my life.
So the advice from the man who knows is to just live with it.
So I have from now until whenever I live until to enjoy leaking pus and blood out of a hole near my anus all day, every day.
April 11th, 2007 5:39pm
Maybe it is time for you to become a chronic weed smoker. Medicinal marijuana. What are the drugs laws in CT like?
April 11th, 2007 5:44pm
I'm not really so bothered by this that I need narcotics. It's just a major pain in the ass...
April 11th, 2007 5:48pm
The problem isn't dead tissue, but rather a constantly healing/re-opening tunnel from my rectum to the surface of my skin. The sides of the tunnel ARE 'healed', that is, the tissue has healed incorrectly and formed a new channel. No sort of treatment designed to eat away dead tissue would have any effect at all except to skeeve me out.
April 11th, 2007 5:52pm
April 11th, 2007 6:11pm
If the fistula has sort-of healed over and is pretty much permanent, can't you just regularly clean it out to keep it from getting infected? Mini fistula enemas or something?
April 11th, 2007 7:35pm
have you tried just packing it with concrete or somesuch? maybe a no-gaps filler? ...anything airtight...
There's no way to prevent it from becoming infected periodically. Even if it never got infected, it'd still drain fluid.
There WAS a study in the Czech republic where they glued fistulas shut with some sort of protein compound laced with antibiotics, but it was only on a sample size of 70 and for some reason didn't include Crohn's patients.
April 11th, 2007 8:35pm
April 12th, 2007 9:14am
Well.. that's one way.. I suppose.. but you could just take probiotics. I guess you may not get the right "mix" that way though.
April 12th, 2007 9:19am
I haven't read the whole article, but a friend did something similar to that poop transplant. After she had her first kid, they gave her some antibiotics that really messed up her system and she got a C-Dif infection. She struggled with that for a while, but basically there was no treatment except increasingly strong antibiotics to try to keep the C-Dif in check. She did some research, found some Doctor in Europe who would sell instructions and a kit to help w/ "harvesting" good poop and processing it... It worked for her.
April 12th, 2007 10:23am
Weren't there some kind of worms you can get through your feet if you go walking barefoot in the shit fields of south africa or something?
April 12th, 2007 11:55am
Yep, which reputedly cures Crohn's and all sorts of things so long as you manage the infestation properly, but it wouldn't heal my fistula.
April 12th, 2007 11:56am
You mean you actually tried it? Wow!
April 12th, 2007 11:57am
I don't need to try it to know that it has a terrible chance of not healing my fistula. The fistula is more or less a permanent fixture.
If I could:
get a proper hookworm infestation
manage the infestation properly so that the population was correct
the infestation actually healed the damage Crohn's had done by suppressing the disease
the disease went into a stable, long term remission, and continued remission for a long period could be predicted beforehand
if I could both convince a competent surgeon that I had cured myself with African parasites
the stability of my condition would last long enough for his handiwork to heal
the surgeon actually performed the conventional treatment for an anal fistulae, which is to slice it wide open and let it drain/heal for several months
the procedure actually worked, and didn't result in an incompetent anal sphincter, making me incontinent for the rest of my life, where before I simply had a slow leak.
Yes, that'd be great.
April 12th, 2007 12:04pm
Do you have to get rid of the worms afterwards, or do they need to stay there in a steady-state symbiosis forever?
April 12th, 2007 1:04pm
Nope the worms die of old age in a year or two, after having released lots and lots of larvae. If you're always walking in mud that has the parasite, you keep re-infesting yourself.
April 12th, 2007 2:17pm
If the worms die off, you have to re-infest yourself. They don't CURE the disease, they suppress it as long as they're present. Allegedly.